Recently founded, the Tourette CBIT Foundation (501c3) was created to provide financial support to families and individuals interested in participating in CBIT. The founder, a mom of an individual diagnosed with Tourette Syndrome, was seeing parents online expressing the want and need for their child to do CBIT. Unfortunately, the common theme was due to the expense, it was not feasible for these parents to get their child into CBIT. Finding this unacceptable, The Tourette CBIT Foundation was created to ease some of those financial hardships so kids can get the CBIT therapy they need and want.
The Tourette CBIT Foundation's Mission is to bridge the gap between the financial obstacles and the individuals wanting CBIT, and to close the gap between what people think of Tourette Syndrome, and what the reality of living with Tourette Syndrome really is.
I am a mother personally affected by Tourette Syndrome (TS). I have seen first-hand the challenges of having TS. I know what Tourette Syndrome is, and more importantly what it isn't. Tourette Syndrome is not a joke. It is not a punchline. There are individuals who struggle daily with new and old tics. They struggle with tics causing physical pain. Having TS is more complex than what we see in the media. Quite often, individuals with TS struggle with mental hardships in addition to their tics. Tourette Syndrome is complicated. At The Tourette CBIT Foundation we have a goal to ease some of those hardships.
CBIT offers that opportunity but the cost of CBIT can be a hindrance. How frustrating to know there is a therapy out there that can provide relief, but it can't happen due to financial hardships. No child should not be able to access something that could change their life for the better because of money. I ask that you please explore our website. Learn about CBIT and Tourette Syndrome. One more person educated, is one less person putting my daughter on the spot, asking her why she is moving the way she is or making the noises she is. For me, and many other parents out there with a child with TS, that is a win.
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